sarahlaughed
New Member
- Region
- USA
I have Ehlers Danlos Syndrome, a genetic connective tissue disorder. It’s degenerative, so I have to take into account potential future loss of function for all purchases. It mostly affected my legs in past decades, but has hit my hands recently, such that my thumbs frequently dislocate.
I still have to get around, though, so I’m looking for a motor assist for my wheelchair, and a cargo e-trike (maybe e-bike, but I think I wouldn’t be able to use a bike as long as something I can stay upright on even if one of my leg joints fail). I can’t afford gas, insurance, and such for a van or car, and am happy enough strapping my wheelchair to the back of a motorcycle, so why not?
I can operate throttles, and I very much enjoy pedaling; pedaling just isn’t a reliable power source for me, since I sometimes find that one leg suddenly doesn’t work. I find recumbent cycles easier to do for long periods than conventional cycles (and I need to be able to go at least 20 miles without a lengthy break), and with the amount of pain my disability generates, every bit of comfort is a plus.
I live in a busy city — lots of traffic, and cyclists often have to hop up a 2-inch curb and leave the road for brief stretches. I’m thinking maybe a fat tire trike, with steering/throttle located closer to my waist, rather than conventional bicycle handlebar, would be easier for my shoulders (which are also loose. All of my joints are loose).
I’m really hoping to find something for $5k or less, but doubt that’s realistic. I’m bracing to swallow my pride and try a GoFundMe for whatever budget is necessary to make it possible for me to get to medical appointments and continue to live independently. An e-bike or e-trike seems perfect, especially since I aspired to Olympic cycling, before my knees blew, and I miss the feel of the wind in my face!
I’m thinking I might need a cargo fat tire trike. Does that sound right? Any recommendations?
I still have to get around, though, so I’m looking for a motor assist for my wheelchair, and a cargo e-trike (maybe e-bike, but I think I wouldn’t be able to use a bike as long as something I can stay upright on even if one of my leg joints fail). I can’t afford gas, insurance, and such for a van or car, and am happy enough strapping my wheelchair to the back of a motorcycle, so why not?
I can operate throttles, and I very much enjoy pedaling; pedaling just isn’t a reliable power source for me, since I sometimes find that one leg suddenly doesn’t work. I find recumbent cycles easier to do for long periods than conventional cycles (and I need to be able to go at least 20 miles without a lengthy break), and with the amount of pain my disability generates, every bit of comfort is a plus.
I live in a busy city — lots of traffic, and cyclists often have to hop up a 2-inch curb and leave the road for brief stretches. I’m thinking maybe a fat tire trike, with steering/throttle located closer to my waist, rather than conventional bicycle handlebar, would be easier for my shoulders (which are also loose. All of my joints are loose).
I’m really hoping to find something for $5k or less, but doubt that’s realistic. I’m bracing to swallow my pride and try a GoFundMe for whatever budget is necessary to make it possible for me to get to medical appointments and continue to live independently. An e-bike or e-trike seems perfect, especially since I aspired to Olympic cycling, before my knees blew, and I miss the feel of the wind in my face!
I’m thinking I might need a cargo fat tire trike. Does that sound right? Any recommendations?
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