30 Days Ago, Needed Oxygen, a Walker, and a Home Health Aid to Leave The House. Today...

Catalyzt

Well-Known Member
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USA
First Ride Post SCA - 1.jpeg


Just getting the bike out of the garage and pumping up the tires (with an electric pump) was so exhausting I literally had to take a nap.

A lot of dark thoughts passed through my head. And I let them pass...

I only lasted 17 minutes, 2.5 miles (just up and down the street) and 85 feet of vertical. Top speed was 20 MPH, average was 9 MPH.

Today i have the good muscle burn and the bad burn at the same time. I'm at peace, but feel like a dog that got hit by a car. A rodeo clown that wound up riding the bull by mistake...

It will be a few days before I try again, but so far, I got away with it! Stay in shape! Keep ridingh!
 
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Just getting the bike out of the garage and pumping up the tires (with an electric pump) was so exhausting I literally had to take a nap.

A lot of dark thoughts passed through my head. And I let them pass...

I only lasted 17 minutes, 2.5 miles (just up and down the street) and 85 feet of vertical. Top speed was 20 MPH, average was 9 MPH.
Big recovery milestone! Hope it goes more quickly now that you're riding again.

A rodeo clown that wound up riding the bull by mistake...
Gee, I feel like that a lot, and I haven't had any big medical adventures lately.

Remember, keep laughing.
 
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I say use your throttle, or ghost pedal, or crank up your PAS level, and let your e-bike help you as much as possible.

You need to enjoy your time in the saddle.

You won't be cheating.
You're in recovery mode.

Extend your ride time, and use your efforts to ride longer at the start of your recovery.

I never pedal.
I can't breathe worth a s*it either.
I don't feel guilty.
I'm enjoying the scenery.
 
I say use your throttle, or ghost pedal, or crank up your PAS level, and let your e-bike help you as much as possible.

You need to enjoy your time in the saddle.

You won't be cheating.
You're in recovery mode.

Extend your ride time, and use your efforts to ride longer at the start of your recovery.

I never pedal.
I can't breathe worth a s*it either.
I don't feel guilty.
I'm enjoying the scenery.

I have no throttle, but yeah, I'm using a lot more assistance than usual! My watts used was 59, calories burned was 50.

Before cardiac arrest, that same 2.5 miles (but with more hills) was 98 watts and 71 calories.

I'm supposed to push hard to speed up my recovery, but it's hard to know how much is too much.

Yesterday was marginal.

I do have enough power to get up some steeper hills around here with high assist, little effort, and no problem, so in theory, I could ride longer. But to do that, I downshift soon enough, my technique has to be good. I need to get used to the bike again first!

Part of the effort is just bending over just to hold the handlebars-- if it were dead flat, I'd still be using muscles that are way out of shape. The surgery was in my abdomen, the incision has healed well, but it's frickin' huge, so my core will need lots of reconditioning.

I can walk 1.5 miles over hilly, broken terrain more easily than I can bend over four or five times to pick up stuff off the floor. It's very deceptive.
 
I'm supposed to push hard to speed up my recovery, but it's hard to know how much is too much.
I went through cardiac rehab 4 or so years ago. They gave me guidelines with recommended increases in exertion, so that should be available to you. They let me advance faster since I was 3 times a week in a rehab center (insurance allowance makes a difference) with real time monitoring. I was trying to progess 2X faster; only once did they say slow down.
 
,.. My watts used was 59, calories burned was 50.

I went for a ride today.

I headed into a +20 kph headwind on the way out.
My amps were up to 18.3 at over Fiddy Volts, so almost 1000 watts continuous at times.

Screenshot_20251001_150926_Gallery.jpg


The way home I was as low as 2 amps with the tail wind.
I didn't pedal.
I don't feel bad about that.

3 hours later, I was back home.

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I probably burned less than 10 calories, but I Really Enjoyed my ride.

I'm supposed to push hard to speed up my recovery, but it's hard to know how much is too much.

,.. so in theory, I could ride longer. But to do that, I downshift soon enough, my technique has to be good. I need to get used to the bike again first!

I think, work on your technique first using Way Less effort, to extend your your ride to enjoy the pleasantries of just cruising along.
 
I went through cardiac rehab 4 or so years ago. They gave me guidelines with recommended increases in exertion, so that should be available to you. They let me advance faster since I was 3 times a week in a rehab center (insurance allowance makes a difference) with real time monitoring. I was trying to progess 2X faster; only once did they say slow down.

I would love to have that level of specificity in guidance. I have sent out some emails, but Imay email my old physical therapist; she's covered by insurance and might give me some guidance.

What I had was sudden cardiac arrest due to blood loss. So in some ways, that's better-- I didn't have a heart attack or heart failure. The only damage to my heart was from shock, and even though it was an extended SCA, the heart is not that fragile from that kind of shock.

The fatigue today, though, it's brutal!
 
The fatigue today, though, it's brutal!

Are you supposed to brutalize yourself ??
Was that the doctors orders ??

What about maybe going for a leisurely ride on your day off from beating yourself to death,.. and just go for a ride.
Let your ebike do the work ??

Enjoy life.
Get refamiliarized with your Ebike.
 
I would love to have that level of specificity in guidance. I have sent out some emails, but Imay email my old physical therapist; she's covered by insurance and might give me some guidance.
So you aren't working with a cardiologist?

I'm not a cardiologist, but have one and my brother is one. Please do not consider this as the best advice for you, but under my conditions, they have said "if you feel ok doing it, do it. If you feel bad, stop doing it."
 
Are you supposed to brutalize yourself ??
Was that the doctors orders ??
Kinda. What the surgeon said was, "A lot of guys who actually survive long enough to be released after what happened to you die about 10 days later because they won't push through the exhaustion. Or, they just do the minimum for PT because let's face it, it's really uncomfortable. You are obviously pushing yourself hard, and that is what you need to do if you want a full recovery, or close to it." (Paraphrased)

What about maybe going for a leisurely ride on your day off from beating yourself to death,.. and just go for a ride.
Let your ebike do the work ??
I can understand why you'd ask this, I may not have been clear: That WAS the easiest ride from my house. There was only 85 feet of vertical over 2.5 miles! I was practically ghost pedaling. The hills around here are very steep, so I'm just riding about three blocks, turning around, and riding back. If I went much slower, I would fall over. THAT is how bad the deconditioning is after a cardiac arrest that was this long, and being in the ICU over five weeks a 67 years old.

I would never have guessed it was possible to be this out of shape! I will probably try a hill over the weekend, I probably do have enough power for it, but wasn't going to do that my first time out. I was like a seven year old who just got rid of the training wheels!
So you aren't working with a cardiologist?

I'm not a cardiologist, but have one and my brother is one. Please do not consider this as the best advice for you, but under my conditions, they have said "if you feel ok doing it, do it. If you feel bad, stop doing it."

No, that's great advice, pretty much what every doc has been telling me! There are two confounding factors: First, no one is exactly sure what the best protocol is for reconditioning because the odds of survival a PEA SCA that lasted as long as mine are in the low single-digit percentages. There aren't a lot of us.

I looked into it, and there are a few studies, but the researchers complain about how small the sample size is, and the fact that survivors had cardiac arrest for such wildly different reasons. Mine was hemorrhagic shock secondary to a ruptured artery due to an autoimmune condition, so there's ALSO the issue of, what is the best recovery strategy for the autoimmune thing? Even THAT is really rare, but recent research suggests: More exercise is better, so long as you don't get too worn out.

The second issue is the delayed reaction effect. I deliberately went slowly and did not push it; I wanted to ride for an even 20 minutes, but I stopped when I felt like I had 30% reserve. I felt great at first-- it was this morning that was brutal!

Swimming today was the opposite. I swam 1,200 feet (which took me 20 minutes, pathetic!) which felt okay while I was doing it... but right after I got out of the pool, I felt terrible, like I had really overdone it. Now, three hours later, I feel great, so it's really hard to judge!

As I was getting dressed, I caught a glimpse of myself in the mirror, and I was like, "What is that on my arm? That's like a huge wrinkle, WTF?!"

And then I realized, "Oh, no, it's not! Hello, tricep! Haven't seen you in 80 days!" Of course, I'm still crazy underweight, but I had ZERO muscle definition, at least that I've noticed, until today." Hey, dudes can be vain, too!
 
Here's my take. You have lost your peak fitness, some body fat, and some amount of muscle mass, but you have not lost a lot of your base fitness. Your body is still in a state of shock from two things; taking a long break from riding, and the massive trauma that you experienced along with the stuff they put in you to keep you alive. As for the first, 80 days isn't a long break in the grand scheme of things from the riding perspective. A lot of riders do that over the winter and get back on the bike in the spring. They feel out of shape, but it doesn't take long to get back to high fitness before it gets warm out. Your body does not lose base fitness that quickly. It can take years, even at 67.

You are taking the right approach. Get back into it slowly, and listen to your body. Don't push to exhaustion, push to moderate pain and fatigue, then rest. Take days off if you feel too tired, and don't beat yourself up about it. You need rest as much or more than exercise. Make realistic targets and do your best.

It really shook me up when I heard about your condition. I'm pulling for you.
 
Here's my take. You have lost your peak fitness, some body fat, and some amount of muscle mass, but you have not lost a lot of your base fitness. Your body is still in a state of shock from two things; taking a long break from riding, and the massive trauma that you experienced along with the stuff they put in you to keep you alive. As for the first, 80 days isn't a long break in the grand scheme of things from the riding perspective. A lot of riders do that over the winter and get back on the bike in the spring. They feel out of shape, but it doesn't take long to get back to high fitness before it gets warm out. Your body does not lose base fitness that quickly. It can take years, even at 67.

You are taking the right approach. Get back into it slowly, and listen to your body. Don't push to exhaustion, push to moderate pain and fatigue, then rest. Take days off if you feel too tired, and don't beat yourself up about it. You need rest as much or more than exercise. Make realistic targets and do your best.

It really shook me up when I heard about your condition. I'm pulling for you.

I think you are on the right track with this. And thank you for your kind thoughts. Means a lot.

Dang, I feel pretty good this morning, I have to say! A little gut pain and pain around the incision the first half hour I was awake. Now almost normal. That's encouraging.

The state of weakness I was in was so extreme! After about 8 or 10 days, the PT guys came-- they were great. Knew the break I bodyboard at, etc... my attitude was, "Yeah! Let's do this! I'm ready to walk down the hall!"

But it was shocking, just sitting up was almost impossible; standing was out of the question. My blood pressure roared up to almost 200 systolic; they insisted I stop, just had me do some movements sitting up. I was practically in tears. So it's more than an 80-day respite. When I left the hospital, I think I cracked 300 steps, maybe 400 steps the day I got back. And that's with O2 and the walker.

I think I'll take today off, ya. Or, I'll do some strength training-- my usual 1 mile walk in the morning, .25 in the evening, and do some curls with the dumb-bells... with, like, no weight on them, or very little weight. I have a rowing machine, too. I could do 5 to 7 minutes with almost no resistance.
 
What I feared was the usual stuff-- screaming out the name of a woman who was not my wife, etc.

No white light, no partner, no dog. Later, when I was on lots of Dilaudid, I did have delusional dreams where I would sneak home and walk the dogs, yes-- and I also rode the Grizl in a delusional dream as well! The dreams were so vivid that when I woke up, it took over five minutes to convince myself: "That could not have happened. You do not have to remind your wife that you didn't give the older dog his medication, or plug the Grizl into the charger." But dang, they felt real!

Right before I coded-- I think-- I was talking to the older ER doctor, and he was saying, "I have no idea what's wrong with you, that's it, I've got nothing left in my bag of tricks," and then there's just this... void which could have been a few seconds, or could have been minutes or hours.

I became aware of floating in a deep red void, I could feel the top half of my body, but had no sensation or concept of the rest. The I saw something like flagella or tentacles, but I knew my brain wasn't processing it right. I thought, "those could be my legs, in jeans" but they were very far away, and I could only feel the right one. I thought, "Well, that's not good, but could be worse. No nerve contact with the left leg, so let me just... fire some amino acids or neurotransmitter precursors in that general direction." And like a video game, I had this mental image of shooting molecules towards my left leg.

And suddenly, I was aware of my left leg, though not as vividly as my right. And I thought, "Ah, okay, that's progress. Let's focus on body integrity-- just holding everything together, e.g., not dissipating into this void. Okay. I think this is working."

Once I was more confident in my own corporeal existence, another thought followed quickly: "You're not getting out of the hospital today, tomorrow, this week, or next week. This is going to last a long time. Just focus on existence, staying alive-- avoid looking too far ahead, though sometimes I may have to."

And yeah, there were moments when I thought, "Oh, man. I absolutely can't do three, four, five weeks of this." It was painful, sure, but the meds worked very well, generally, and I have chronic pain anyway, so WTF. The issue was profound discomfort, feeling incredibly unhealthy. Hard to explain.

The hallucinations, delusions, post-intubation psychosis, extreme panic attacks etc. were really disturbing, but it helped being a clinician. I'd snap out of a delusion -- I expect that I appeared to be asleep, mostly, with brief moments of opening my eyes, until I woke up completely -- and then, I'd tell the nurse or doctor, "Okay, a lot of psychiatric symptoms right now, but nothing outside what we might expect. Jerking awake abruptly is probably THIS medication, which is for blood pressure but is known for that side effect, the paranoia and panic is caused by THAT, and the hallucinations are the post-intubation psychosis." They'd swap out some medications for others, and over the course of four or five days, that all settled down and I could sleep for four hours at a time instead of only two.

Those delusions were really bad, terrifying. I'm glad that I am a therapist, that I've had a lot of therapy myself, and that I'm experienced with altered states of consciousness.

The most hysterically funny moment was real early on in the first week, when I'd been off the vent maybe two or three days. I think I'd just done some PT, too, so I was fully awake. Docs came in and asked me my name, my birthday, the date, the day of the week, and where I was. I answered flawlessly, and they're looking at each other and nodding and smiling, like, "This is cool! Dude doesn't have brain damage, or probably not much!"

Then they asked, "Okay, do you know where you are in the hospital?"

And I snorted derisively. "Of course. I'm in the ICU, in your Owl Aviary Unit, which also seems to be some kind of highway rest stop. Had no idea you guys were doing that kind of therapy here, very impressive facility." The doctors were absolutely deadpan, didn't burst out laughing, total pros. Damn, those cats had game!

The owls were not scary, they were benevolent, overlooking us from some gallery or balcony. They were there to help, and knew what they were doing.

Yes, they were a little spooky, for sure-- I will not pretend that the sight of maybe a half dozen five-foot-high Research Owls (and a couple of fledglings, I think, too) staring at me was not unsettling. But so were a lot of tests and procedures. Once I realized I was in really deep sh!t, I stopped sweating the small srtuff.

We also got the meds wrong for one of several full-body MRIs, and I wound up with the Nova Scotia MRI team, which was running the scan in parallel via a multidimensional portal, and I woke up in an old hotel that-- weirdly-- had the same friendly nurses as the hospital. A few days later, the second time we ran the scan, the meds were still heavy, but manageable; I didn't try to get out of the tube. I fell asleep and flinched once, responded to instructions, but it was a tiny movement, not enough to throw off the scan.

As they rolled me out of the tube, it was like a science fiction movie-- I guess I'd been in for 45 or 50 minutes-- and the techs were saying, "Great job, man. Look at these numbers... all the data is perfect, we got just what we needed. What happened the first time?"

And I answered, "Yeah, last time I wound up transported through the portal, and woke up with the Nova Scotia team. I swear, they looked just like you guys, they just had Canadian accents or whatever." That got a big laugh.

So I did have some very, very bizarre and surreal experiences, but I don't know that I was conscious while I was dead-- I think I may have been, but who knows? My theory is I probably did black out briefly, but that the red void part was happening while my heart was stopped; when I could feel my left leg may have been when it restarted, but that's just a wild theory.
 
The most hysterically funny moment was real early on in the first week, when I'd been off the vent maybe two or three days. I think I'd just done some PT, too, so I was fully awake. Docs came in and asked me my name, my birthday, the date, the day of the week, and where I was. I answered flawlessly, and they're looking at each other and nodding and smiling, like, "This is cool! Dude doesn't have brain damage, or probably not much!"

Then they asked, "Okay, do you know where you are in the hospital?"

And I snorted derisively. "Of course. I'm in the ICU, in your Owl Aviary Unit, which also seems to be some kind of highway rest stop. Had no idea you guys were doing that kind of therapy here, very impressive facility." The doctors were absolutely deadpan, didn't burst out laughing, total pros. Damn, those cats had game!

The owls were not scary, they were benevolent, overlooking us from some gallery or balcony. They were there to help, and knew what they were doing.

Yes, they were a little spooky, for sure-- I will not pretend that the sight of maybe a half dozen five-foot-high Research Owls (and a couple of fledglings, I think, too) staring at me was not unsettling. But so were a lot of tests and procedures. Once I realized I was in really deep sh!t, I stopped sweating the small srtuff.

We also got the meds wrong for one of several full-body MRIs, and I wound up with the Nova Scotia MRI team, which was running the scan in parallel via a multidimensional portal, and I woke up in an old hotel that-- weirdly-- had the same friendly nurses as the hospital. A few days later, the second time we ran the scan, the meds were still heavy, but manageable; I didn't try to get out of the tube. I fell asleep and flinched once, responded to instructions, but it was a tiny movement, not enough to throw off the scan.

As they rolled me out of the tube, it was like a science fiction movie-- I guess I'd been in for 45 or 50 minutes-- and the techs were saying, "Great job, man. Look at these numbers... all the data is perfect, we got just what we needed. What happened the first time?"

And I answered, "Yeah, last time I wound up transported through the portal, and woke up with the Nova Scotia team. I swear, they looked just like you guys, they just had Canadian accents or whatever." That got a big laugh.

What an experience! And fascinating to hear it from a therapist's perspective. Must've been absolutely terrifying at times, but good that you could also joke about it.

The 10-day hospital stay after my total laryngectomy in 2011 was also quite the medical adventure, though much easier than yours. My goal quickly became to either (a) make my caregivers crack up, or (b) leave them as speechless as I was with absurd answers to their many questions. As often as possible.

With no speech whatsoever at the time, my only tool was an electronic notepad that I could write on and then erase. Provided I hadn't lost the stylus somewhere in the sheets.

Turned out to be a fine distraction. Astoundingly, acetaminophen covered most of the pain, so I managed to stay alert and had plenty of time to anticipate and craft my next joke. And I got pretty good at making them laugh — in part, because they were all expecting morose and got just the opposite. Got much better care as a result.

Especially enjoyed yucking it up with the young fellow-MD residents who came twice a day on rounds. They were quite impressed that I finally cracked up the normally gruff attending ENT surgeon who did the laryngectomy.

He was a world-renowned academic expert in this very difficult 18-hour procedure and took himself quite seriously. How ironic that his last name was Song.
 
A buddy last year had a heart/lung issue and was lacking oxygen and hallucinating. His wife couldn't take it, it was that bad, he would accuse her, so she kicked him out. He is doing much better and riding and ebike but is a permanent resident at a convalescent home. I visited him today and brought him a slow smoked NY steak.
 
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