my e-bike story (long!)

mschwett

Well-Known Member
Region
USA
i have been inspired reading some of the other stories of how much e-bikes have contributed to people's lives - car replacement, overcoming health challenges, the pleasure of being outdoors and getting exercise, etc. so here's my story:

i'm in my mid 40s. born in texas to new yorkers who were migrating west like everyone else in the 70s. grew up in the silicon valley and as an adult have live in san francisco proper, near the top of one of the famously steep hills, where roads don't wind back and forth but the grid just goes straight up. i was an athletic kid and swam and played water polo through collegiate years. drifted away from exercise due to professional focus and etc but around 10 years ago i got into a bit of a "let's get back into fitness" competition with my brother. we both got seriously into running. had the usual spate of runner's injuries, mostly stress fractures, but i was in my 30s and i was invincible!! until... i started to get very light headed from time to time.

i figured it was dehydration - i was doing 15+ miles at a time with no real hydration, or nutrition. i tried gels and electrolyte drinks but it just kept getting worse, until one day after a run i was lying on the floor at home alone in a confused, light-headed state, thinking that i should call 911 but my muddled thought processes were getting mixed up in whether i should first try and change out of my running shorts, or not. after a half hour i felt normal again, but my wife made me go to a doctor, as women tend to do!

to make a very long story a little shorter, i was diagnosed with a rare heart rhythm condition that causes ventricular tachycardia, a dangerously rapid and uncoordinated heartbeat. the kicker - the particular condition is essentially triggered by exercise. for those with the rare genes for it, the heart muscles don't knit back together properly after the strain of exercise, causing scars that disrupt the electrical rhythm of the heart. i was immediately implanted with an ICD, which is an internal device that shocks you (like the paddles on TV!) if your heart rhythm goes awry. i was told to stop all exercise, and prescribed medications that made me feel awful. the VT kept happening, resulting in light-headedness, sometimes abrupt fainting, and the added bonus of getting shocked. i can't really describe the feeling, perhaps a bit like getting kicked from the inside of your body. by a horse. i had a procedure to try and burn away the scarred tissue, which did not work very well and was pretty much a nightmare to recover from due to complications. life was going downhill at this point, trying to continue working a high-stress, public facing job, and raise a one year old. we decided to give the procedure a try again, this time with a very specialized expert doc on the east coast. while attempting to gain access to the surface of the heart, they made a hole all the way through (oops), necessitating an emergency open heart repair. just like on TV, the guys with the saws standing there at the ready. this was, to massively understate things, a huge challenge going forward. the usual recovery was compounded by the underlying problems themselves, and for almost a year i basically could not do much beyond sit around and read. i had no energy, a pretty serious (and warranted!) fear of getting shocked, which happened many, many times. i simply could not recover and during this period had dozens upon dozens of trips to the hospital, procedures, medication changes, etc. i tried to go back to work, but was in no way capable of it. a rather abrupt bout of constant coughing led to an ER trip, which eventually led to the discovery, during a second open heart surgery, that there was a huge pericardial infection. cue up another tough recovery from surgery, this time with massive IV antibiotics and antifungals for a long time, cardiac rehab, more medication changes, etc etc.

it was the toughest two years of our lives, but thankfully things stabilized. very few shocks, i was working full time again, but still no exercise other than walking, which to be honest i felt pretty crappy doing. but life goes on, and 5 or 6 years passed by. we had another kid, settled into a routine, and then the pandemic came. i never really loved walking everywhere, out of breath and light headed, so we rode a lot of transit. that didn't seem so great anymore (and much of it shut down), so i started riding bikeshare e-bikes, upright scooters, etc, until an ad caused me to schedule a test ride of a vanmoof s3. they brought the bike to my door and off i went. seriously fun! i was hooked and ordered one right away. it arrived a few months later, and i started riding it pretty much everywhere, either by myself or with our toddler on the back and our older daughter on her own bike. after a few hundred miles i started talking to my friends who were serious cyclists, and realized that the vanmoof wasn't a machine for the long, fast rides that i was starting to enjoy. on a whim i visited a local shop and the specialized turbo creo caught my eye. i test rode it, and while it felt very strange - skinny tires, stiff frame, leaning forward - it also felt kind of awesome. it wasn't the right size and i wasn't quite ready to drop 10k on a bike, so i went to do some more research and found another closer shop that had a slightly more modestly priced one in the right size. called them up, went to ride it, had them change the stem and tires, and took it home. i was hooked. totally hooked. every free hour i had (which wasn't that many lol) i was either riding it, working on it, or reading about riding. 500 miles went by in the first month, and then another 500, and i started realizing that i could pretty carefully control exertion level almost independently of terrain and conditions thanks to the combination of gearing, speed, and motor. i got more and more ambitious, doing rides up to 120 miles, and using the motor less and less, until by six months ago i was pretty much only using it on very steep gravel climbs.

at that point, i asked myself, "why am i pushing around an extra 15lb of bike when i only rarely 'need' it?" so, i did something that would have seemed unthinkable just two years ago, and ordered a "just-a-bike" for myself, a very lovely 14lb carbon road bike with all the latest fancy stuff. it showed up a month or two ago, it's amazing, and i have about 800 miles on it already. whether the carefully monitored exercise i'm doing is healthy for my damaged and atypical heart is not entirely clear - i keep my average heart rate for a ride in the 100-110 range, maximum 130, and while i've gotten stronger and a bit lighter since i started, i'm not sure my heart is actually getting much stronger. i can't (and wouldn't) do a crazy sustained climb or sprint, but i can pound out 200 watts of leg power pretty much indefinitely, with short bursts of more. i've done 80 miles with the just-a-bike, averaging around 17mph, and 60 miles with almost 5,000 feet of climbing. on a flat ride of an hour or two i can average 19 or 20mph. although i don't "need" the creo for most of my rides, i still love it after 6,000 miles in a year, would never go off-road without it, ride it to and from work often, or when i'm tackling a new route that may be more than i can otherwise handle. the vanmoof still does errand and kid outing duty, and my older daughter has graduated to an adult bike! my n+1 may be a custom titanium job with a pinion, belt drive, and rear hub motor to replace the vanmoof. TBD.

TLDR; a relatively terrible heart condition left me unable to exercise since my mid 30s. e-bikes showed me that i could actually get out there and do just the right amount of exercise for my body, and have an incredible time doing it... so much so that i eventually didn't even really need the e-part very often, but i still love e-bikes. i'm super grateful for forums like this one, bikeforums, reddit, a couple facebook groups, and of course all my snooty cyclist friends!

just-a-bike:
0423-restStop.jpg


just-a-bike happy place:
0454-almostRidgecrest.jpg


creo:
9790-creoBenchGGB.jpg


pre-cycling, it never even occured to me that these places were a reasonably short bike ride from my front door.
0287-creoRedwoods.jpg


in gravel mode:
0061-gravelCreo.jpg


on the subway home from more gravel
7835-creoBart.jpg




and props to the bike that started me on this journey! (when it works, it's great for urban errands and commuting)
1197-vanMoof-1620.jpg


1190-quadLock-1620.jpg


the kids, with my older daughter's first adult bike!
0531-natalieBike.jpg
0026-noelleVanMoof.jpg


our usual mode of urban transport:
0586-bikes.jpg
 
i have been inspired reading some of the other stories of how much e-bikes have contributed to people's lives - car replacement, overcoming health challenges, the pleasure of being outdoors and getting exercise, etc. so here's my story:

i'm in my mid 40s. born in texas to new yorkers who were migrating west like everyone else in the 70s. grew up in the silicon valley and as an adult have live in san francisco proper, near the top of one of the famously steep hills, where roads don't wind back and forth but the grid just goes straight up. i was an athletic kid and swam and played water polo through collegiate years. drifted away from exercise due to professional focus and etc but around 10 years ago i got into a bit of a "let's get back into fitness" competition with my brother. we both got seriously into running. had the usual spate of runner's injuries, mostly stress fractures, but i was in my 30s and i was invincible!! until... i started to get very light headed from time to time.

i figured it was dehydration - i was doing 15+ miles at a time with no real hydration, or nutrition. i tried gels and electrolyte drinks but it just kept getting worse, until one day after a run i was lying on the floor at home alone in a confused, light-headed state, thinking that i should call 911 but my muddled thought processes were getting mixed up in whether i should first try and change out of my running shorts, or not. after a half hour i felt normal again, but my wife made me go to a doctor, as women tend to do!

to make a very long story a little shorter, i was diagnosed with a rare heart rhythm condition that causes ventricular tachycardia, a dangerously rapid and uncoordinated heartbeat. the kicker - the particular condition is essentially triggered by exercise. for those with the rare genes for it, the heart muscles don't knit back together properly after the strain of exercise, causing scars that disrupt the electrical rhythm of the heart. i was immediately implanted with an ICD, which is an internal device that shocks you (like the paddles on TV!) if your heart rhythm goes awry. i was told to stop all exercise, and prescribed medications that made me feel awful. the VT kept happening, resulting in light-headedness, sometimes abrupt fainting, and the added bonus of getting shocked. i can't really describe the feeling, perhaps a bit like getting kicked from the inside of your body. by a horse. i had a procedure to try and burn away the scarred tissue, which did not work very well and was pretty much a nightmare to recover from due to complications. life was going downhill at this point, trying to continue working a high-stress, public facing job, and raise a one year old. we decided to give the procedure a try again, this time with a very specialized expert doc on the east coast. while attempting to gain access to the surface of the heart, they made a hole all the way through (oops), necessitating an emergency open heart repair. just like on TV, the guys with the saws standing there at the ready. this was, to massively understate things, a huge challenge going forward. the usual recovery was compounded by the underlying problems themselves, and for almost a year i basically could not do much beyond sit around and read. i had no energy, a pretty serious (and warranted!) fear of getting shocked, which happened many, many times. i simply could not recover and during this period had dozens upon dozens of trips to the hospital, procedures, medication changes, etc. i tried to go back to work, but was in no way capable of it. a rather abrupt bout of constant coughing led to an ER trip, which eventually led to the discovery, during a second open heart surgery, that there was a huge pericardial infection. cue up another tough recovery from surgery, this time with massive IV antibiotics and antifungals for a long time, cardiac rehab, more medication changes, etc etc.

it was the toughest two years of our lives, but thankfully things stabilized. very few shocks, i was working full time again, but still no exercise other than walking, which to be honest i felt pretty crappy doing. but life goes on, and 5 or 6 years passed by. we had another kid, settled into a routine, and then the pandemic came. i never really loved walking everywhere, out of breath and light headed, so we rode a lot of transit. that didn't seem so great anymore (and much of it shut down), so i started riding bikeshare e-bikes, upright scooters, etc, until an ad caused me to schedule a test ride of a vanmoof s3. they brought the bike to my door and off i went. seriously fun! i was hooked and ordered one right away. it arrived a few months later, and i started riding it pretty much everywhere, either by myself or with our toddler on the back and our older daughter on her own bike. after a few hundred miles i started talking to my friends who were serious cyclists, and realized that the vanmoof wasn't a machine for the long, fast rides that i was starting to enjoy. on a whim i visited a local shop and the specialized turbo creo caught my eye. i test rode it, and while it felt very strange - skinny tires, stiff frame, leaning forward - it also felt kind of awesome. it wasn't the right size and i wasn't quite ready to drop 10k on a bike, so i went to do some more research and found another closer shop that had a slightly more modestly priced one in the right size. called them up, went to ride it, had them change the stem and tires, and took it home. i was hooked. totally hooked. every free hour i had (which wasn't that many lol) i was either riding it, working on it, or reading about riding. 500 miles went by in the first month, and then another 500, and i started realizing that i could pretty carefully control exertion level almost independently of terrain and conditions thanks to the combination of gearing, speed, and motor. i got more and more ambitious, doing rides up to 120 miles, and using the motor less and less, until by six months ago i was pretty much only using it on very steep gravel climbs.

at that point, i asked myself, "why am i pushing around an extra 15lb of bike when i only rarely 'need' it?" so, i did something that would have seemed unthinkable just two years ago, and ordered a "just-a-bike" for myself, a very lovely 14lb carbon road bike with all the latest fancy stuff. it showed up a month or two ago, it's amazing, and i have about 800 miles on it already. whether the carefully monitored exercise i'm doing is healthy for my damaged and atypical heart is not entirely clear - i keep my average heart rate for a ride in the 100-110 range, maximum 130, and while i've gotten stronger and a bit lighter since i started, i'm not sure my heart is actually getting much stronger. i can't (and wouldn't) do a crazy sustained climb or sprint, but i can pound out 200 watts of leg power pretty much indefinitely, with short bursts of more. i've done 80 miles with the just-a-bike, averaging around 17mph, and 60 miles with almost 5,000 feet of climbing. on a flat ride of an hour or two i can average 19 or 20mph. although i don't "need" the creo for most of my rides, i still love it after 6,000 miles in a year, would never go off-road without it, ride it to and from work often, or when i'm tackling a new route that may be more than i can otherwise handle. the vanmoof still does errand and kid outing duty, and my older daughter has graduated to an adult bike! my n+1 may be a custom titanium job with a pinion, belt drive, and rear hub motor to replace the vanmoof. TBD.

TLDR; a relatively terrible heart condition left me unable to exercise since my mid 30s. e-bikes showed me that i could actually get out there and do just the right amount of exercise for my body, and have an incredible time doing it... so much so that i eventually didn't even really need the e-part very often, but i still love e-bikes. i'm super grateful for forums like this one, bikeforums, reddit, a couple facebook groups, and of course all my snooty cyclist friends!

just-a-bike:
View attachment 121995

just-a-bike happy place:
View attachment 121996

creo:
View attachment 121997

pre-cycling, it never even occured to me that these places were a reasonably short bike ride from my front door.
View attachment 122011

in gravel mode:
View attachment 122004

on the subway home from more gravel
View attachment 122005



and props to the bike that started me on this journey! (when it works, it's great for urban errands and commuting)
View attachment 121998

View attachment 121999

the kids, with my older daughter's first adult bike!
View attachment 122006 View attachment 122012

our usual mode of urban transport:
View attachment 122007
Brilliant story. Really inspiring. I think all that (reasonable) exercise must help your heart. And anyway the reduction of stress caused by the lovely rides you do must have a beneficial effect.

When we look back, lockdown certainly had some unusual results. It got me back on a bike after 15 years and although not as dramatic as your journey has really helped my health.

Also how cool does your Creo look in those iconic locations! But that Aethos is the winner hands down, just simplicity and classic. Picked one up with my little finger at my lbs once and couldn't believe how light it was.

I was never drawn to Van Moof myself, something about the way they enclosed the chain rather than use a gates drive seemed a bit cheap & all for the look. Had a feeling of a tech start up the way fan boys online were calling it the second coming.

When you get your titanium/pinion/gates drive please post some pictures. That sounds like my dream bike. Though still hoping Pinion or some similiar high end engineering firm develops a combined mid drive motor with internal gears. Think a small French company has just built one, but early days.
 
Glad to see you are doing much better. Keep enjoying those bikes and don’t over do it.
 
Awesome, inspiring story, @mschwett; lovely family there, too, to keep you focused while they in turn, look out for your well being. Your life circumstances as to why it brought you here to this forum is what makes the EBR forum so great.
 
whether the carefully monitored exercise i'm doing is healthy for my damaged and atypical heart is not entirely clear
Good to read you are doing really good.

I'm not a stranger to heart conditions. Heart attack at 36; no restrictions from that. In my 60s, a-fib with 150 -160 heart rates; not very fun. I've got a frequent zappers card (cardioversions) and had 2 ablations.

Your condition is much worse since it is triggered by something that is good for you.

Hasn't your cardiologist given you guidance on our exercise regimine? My younger brother is a cardiologist and says most conditions are very fixable to lead the life you want.
 
Brilliant story. Really inspiring. I think all that (reasonable) exercise must help your heart. And anyway the reduction of stress caused by the lovely rides you do must have a beneficial effect.

When we look back, lockdown certainly had some unusual results. It got me back on a bike after 15 years and although not as dramatic as your journey has really helped my health.

Also how cool does your Creo look in those iconic locations! But that Aethos is the winner hands down, just simplicity and classic. Picked one up with my little finger at my lbs once and couldn't believe how light it was.

I was never drawn to Van Moof myself, something about the way they enclosed the chain rather than use a gates drive seemed a bit cheap & all for the look. Had a feeling of a tech start up the way fan boys online were calling it the second coming.

When you get your titanium/pinion/gates drive please post some pictures. That sounds like my dream bike. Though still hoping Pinion or some similiar high end engineering firm develops a combined mid drive motor with internal gears. Think a small French company has just built one, but early days.

thanks. the mental health benefits are definitely measurable. it's a strange thing that you can know, intellectually, that everything is exactly the same as it was two hours ago, but feel immensely better and more optimistic about the same things after some exercise.

i have a love-hate relationship with the vanmoof. a lot of the components are VERY cheap, sacrificed in order to pay for the integration and customization of many other elements. the covered chain is a big plus for a lot of people, but just try and change the rear tire or tube. it's a freaking nightmare, and many shops simply refuse to work on them. the integration of motor, battery, automatic shifting, controls, top tube display is absolutely top notch and seamless, but those same custom electronic and mechanical bits also fail like crazy. thankfully the local brand shop fixes/replaces things quickly and for free. i've gone through three sturmey-archer IGHs, two front motors, two sets of electronics, and two batteries. disgusting.

the ti bike is a long term project, but probably not QUITE long term enough to wait for an integrated motor/transmission. that would be AMAZING, and i bet there are some efficiencies to be had there given the reduction gears in mid-drives.
 
Good to read you are doing really good.

I'm not a stranger to heart conditions. Heart attack at 36; no restrictions from that. In my 60s, a-fib with 150 -160 heart rates; not very fun. I've got a frequent zappers card (cardioversions) and had 2 ablations.

Your condition is much worse since it is triggered by something that is good for you.

Hasn't your cardiologist given you guidance on our exercise regimine? My younger brother is a cardiologist and says most conditions are very fixable to lead the life you want.

luckily i haven't had any atrial involvement from the rhythm side or a traditional "heart attack," although at my lowest point i was pretty deep into heart failure (ejection fraction in the 20s) caused by all the other complications. even still, a transplant is possibly in my (hopefully distant) future given gradually declining heart function and no more avenues to explore for epicardial ablations. the kind of ablations they do for this condition involve burning the outside of the heart rather than the inside, so typically you can only have it done once or twice, it turns out.

my electrophysiologist is excellent, head of the department here at UCSF, but his advice is somewhat nonspecific. keeping the average HR around 100 and ideally never much more than that, but he cautions that HR isn't a great measure of cardiac strain, and that the official recommendation for this condition is still "nothing more than walking or light yoga." i'm now on entresto, which they think will have some long term benefits in avoiding the negative effects of light exercise, and i haven't seen any increase at all in arrythmia over my 16 months of riding. hopefully i'm not pushing it too hard, but it's hard to resist the urge sometimes.
 
Glad your ebikes have given you some freedom despite your condition. You have some awesome scenery to ride to.
My brother-in-law has tachycardia. Something about rogue cells on the heart starting inappropriate rhythms that mess the whole performance up. They scarred his heart to kill some of these cells. Hope that is the end of it. His brother age 28 swam out 100 yards off a S California beach which he did a lot, and drowned. Probably had the disease, too. He was a nuclear engineer with master's degree, such a waste. Makes me glad the wife & I weren't able to have a child. Terrible curse to pass on, a disease like that.
Have you thought of a garmin inreach mini to show where you are at all times? Cell phones are nice but I go places without coverage. Inreach uses a sattellite, but only about $30 a month or so since no speech.
Age 71 my heart is starting to skip beats when I don't exercise much. 2 skips out of 4 this March @ 72 bpm. I may have to get on the cardiologist treadmill next year. Heart runs fine up to 168 bpm from June on when I am in shape. I've had two healthy, pretty fit, friends die in their sleep in the last 10 years. Tried to buy an ibeat but only cardiologists can sell them apparently. Couldn't get a cardiologist appointment til May, when rhythm is always fine. Ibeat calls 911, plays a recording, if your heart stops. I live 8 blocks from the ambulance station and 1.2 miles from the hospital when resting in winter, Ibeat could do me some good in winter when I'm at risk.
 
Last edited:
Glad your ebikes have given you some freedom despite your condition. You have some awesome scenery to ride to.
My brother-in-law has tachycardia. Something about rogue cells on the heart starting inappropriate rhythms that mess the whole performance up. They scarred his heart to kill some of these cells. Hope that is the end of it. His brother age 28 swam out 100 yards off a S California beach which he did a lot, and drowned. Probably had the disease, too. He was a nuclear engineer with master's degree, such a waste. Makes me glad the wife & I weren't able to have a child. Terrible curse to pass on, a disease like that.
Have you thought of a garmin inreach mini to show where you are at all times? Cell phones are nice but I go places without coverage. Inreach uses a sattellite, but only about $30 a month or so since no speech.
Age 71 my heart is starting to skip beats when I don't exercise much. 2 skips out of 4 this March @ 72 bpm. I may have to get on the cardiologist treadmill next year. Heart runs fine up to 168 bpm from June on when I am in shape. I've had two healthy, pretty fit, friends die in their sleep in the last 10 years. Tried to buy an ibeat but only cardiologists can sell them apparently. Couldn't get a cardiologist appointment til May, when rhythm is always fine. Ibeat calls 911, plays a recording, if your heart stops. I live 8 blocks from the ambulance station and 1.2 miles from the hospital when resting in winter, Ibeat could do me some good in winter when I'm at risk.
Your Brother in law (and his family) likely have something similar to what I do; in too many cases the first sign is someone dropping dead of VT or VF during exercise.

I have an ANGI helmet and of course an iphone with me at all times, and I generally don’t ride out of service areas. But if I did I’d definitely consider an inreach or similar. PVCs (skipped beats) can really drive you crazy if you think too much about them. Before I got things under control I’d have tens of thousands a day, beat, skip, beat beat beat, skip beat skip beat beat beat skip beat skip beat skip… now i just get one every once in a while, rarely when riding but it’s always a nice little reminder when I’m on the bike and get that quick pressure in the throat and a couple beats go off wrong.
 
I had and still have PVC’s. I wore a monitor for a day and had several hundred, most of which I didn’t feel. I took beta blockers for a couple of years but they made me tired. I was able to wean off the and for what ever reason I don’t have them near as bad.
 
Back